jeffk3510 -> RE: OT: Corona virus (5/5/2020 8:31:52 PM)
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ORIGINAL: Canoerebel I'd never heard of KD before Cap and you mentioned it. Thus prompted, I looked it up. I see that it's treatable; I read your note that your boy didn't respond to the (usual?) treatment. Did he recover fully (that seems likely, else you'd probably have mentioned it)? quote:
ORIGINAL: jeffk3510 quote:
ORIGINAL: Cap Mandrake Obvert is right! Everyone stop defending themselves. [;)] Cases ramping up in Orange County, Calif. My wife's hospital just doubled their COVID ICU size with the help of FEMA. My colleague admitted a patient with Kawasaki's Disease two days ago. High fever, conjunctivitis. COVID PCR negative but IGG antibody POSITIVE. The toddler had a bad case of coronary aneurysms (a serious complication of KD). Children's Hospital reporting a surge in KD patients (an uncommon condition). Perhaps this is a post-infectious complication of COVID? My middle boy had KD last year - I wouldn't wish it on anyone. He didn't respond to the IVIG - that was what was so scary. We're seeing a lot of articles trying to link the two together or tie them together somehow. Not sure, but they could be. Hard to say on fully - I don't think we'll ever fully know. We hear horror stories of healthy 20 and 30 year olds dying of heart disease/heart attacks that had KD when they were kids, and appeared as healthy as the next guy... We've also heard of people being fine. He has heart damage, no doubt. He runs around and plays just as hard as his buddies, and doesn't complain about shortness of breath etc or aches... He has some issues with his heart that I can't spell/explain but I know what they are. He did not have them before he had KD. I am not a doctor, but I think you will hear about kids getting this more and more. We're following the information that has come out about Covid/KD possible link. My wife follows this a lot more than I do. Once we had it, went through it etc. a handful of friends told us they've gone through it. He eventually accepted the IVIG, but they had to put it in in a different spot than the IV in his wrist. His blood pressure tanked and almost didn't recover, so they stopped the first round entirely, which allowed his pressure to recover. I am not surprised you haven't heard about it Dan - most people haven't. It is an illness that causes inflammation in the blood vessels in the body. First signs are fever that will not break. He had 104 temp for 5 straight days. I am very dissapointed in our hospital in town. They did not take us serious for a couple of days before we finally went to our pediatrician 2 hours away, who immediate sent us to the PICU in Wichita with a heart specialist. The biggest issue the entire time was protecting his heart, which to this day our hospital in town damaged by not taking us serious enough in my opinion. The couple extra days of waiting hurt it I truly believe. Their tongue also turns and looks just like a strawberry - google it. The medical grad kid "observing" that day noticed that and mentioned it was different than what he had seen - but the head ER doc brushed him off because he was a kid and said it was tell tale hand foot mouth [8|] All joking aside, I remember googling what the hell was wrong with him and couldn't figure it out. All his symptoms lined up with Boubonic Plague before we went to the PICU. The hardest part of the whole thing was sitting with him not know what was happening until we got to the PICU. Most of the nurses at the PICU were very familiar with KD it seemed like. Him not reacting to the treatment, and doing the opposite was scary. Seeing the defibs ready for your 6 year old child and look of uncertainty on nurses faces isn't exactly reassuring. Anyway - I am rambling. To answer you question, Dan. He seems normal now and runs around just fine - it seems like later on in life he could pass on on to his children, and maybe not have the life expectancy of someone else who doesn't have it - I just don't know because I don't know how much damage his heart took, but I do know it took some. KD is treatable, you usually don't die from it, but it is heart disease in children... Our biggest issue was we almost lost him during treatment because of the blood pressure drop. This was also a handful of months to the day after my wife sat in KC with her mom as she didn't make it from a liver/kidney transplant operation and she was reliving that all over again... the tubes/noises/nurses/doctors/smells etc... she's a pretty strong lady, but it ****ed her up pretty good for a while mentally. She's a lot tougher than I am. It sure has changed my perspective on what is important in life and what isn't. I will admit that. Thank you for asking about it. I've witnessed cancer, parkinsons, failed surgeries.. etc etc.. but man anything that involves children - sucks. Pure and simple and it's just not fair. There isn't any other way to put it. Cap can probably tell you more about it than I can - I just know it was awful to go through it, but looking back he was probably going to make it the entire time, but we did dodge a bullet with the blood pressure drop, because my wife told them to stop just to let his body rest and take a breather, or he probably wouldn't of made it. Sorry for the long rambling post
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